Resources for Cancer Families
There are numerous websites and organizations that are available to help a newly diagnosed family. Although incredibly helpful, I also know that it can also be a bit overwhelming. Below I have listed a handful of sites, each one, I believe, offers some the best consolidated lists and resources all in one place. It takes time to even begin to understand what you need, so please feel free to contact me if you have any questions, would like some guidance, or just need someone to talk to who "gets it".
American Childhood Cancer Organization - A fabulous resource that will help direct you to the help you need; from comfort kits and hero beads, to peer support and links to outside resources.
Children's Oncology Group (COG) - COG is a National Cancer Institute supported clinical trials group, that is the world's largest organization devoted to childhood cancer research. This page will have a plethora of information to help guide you through ALL phases of treatment.
Coalition Against Childhood Cancer - A website designed to UNIFY the childhood cancer community through partnering with as many organizations from around the world. This probably has the most comprehensive list of member organizations. The "Hope Portal" ,that is Family Resource tool, in partnership with Children's Hospital Los Angeles is one of my favorite resources.
Pediatric Oncology Resources Center - A site, created by a parent of a childhood cancer fighter, provides extensive lists of many helpful links, from childhood cancer information and treatment issues, to family support and helpful sites..